Advisory Group – Co-Production

The Co-production Advisory Group was formed in May 2022 and our work is supported by the Lived Experience Engagement Lead. Our ten members were recruited from each of the five national IMPACT assemblies from across the UK. Each member has direct experience of drawing on care and support or as a carer. To support their work the group has developed a Charter.

Prior to this group, we had a Co-production Panel. The panel was involved in early plans during the co-design phase of IMPACT.

Our Co-Production Team

Karen
McCormick

Lived Experience
Engagement Lead

As a parent of a young adult with a disability, I found myself researching personalisation in care and international best practice. My research and lived experience ignited a passion for something better – change and reform. That’s what I think IMPACT is about and I’m delighted to be part of the Advisory Group team.

Ann Marie
Penman

Scotland

Too often, the voices and views of lived experience are not listened to. I see IMPACT as an opportunity to share my lived experiences, as a carer, in a place where they will be heard, and can contribute to positive change within adult social care.

Isaac Samuels

England South & West Midlands

I am passionate about adult social care, and the difference this advisory group can make to people with disabilities. IMPACT is really trying to establish best practices across the sector. As a brown, gay, disabled person, I feel it is important for me to be a voice for others like me in this process.

Ceri Davis BEM

England South & West Midlands

I am actively involved in charitable work for disabled, disadvantaged, and life-limited children and families. My focus is on lived experience projects and opportunities. IMPACT stands out to me because, like everyone else, I believe that good support is about having a life.

Terence Davies

Wales

For over 12 years I have been sharing my personal learning about taking back control for my own health, self-management, and advocating for myself and my health needs. I believe my work within IMPACT’s Advisory Group is a chance to take this one step further.

Hilda Hope

Northern Ireland

My professional background as a Nurse in the NHS has focused on various aspects including carer support services and strategic approaches. I also have experience as a full-time and part-time carer for many family members and neighbours. I have a keen personal interest in the role of and needs of carers; and a desire to improve the experiences of carers and availability of supporting services.

Jacqui Darlington

England North & East Midlands 

I’m a Carers Wellbeing Working and Communications Officer for The Carers Centre Leicestershire and Rutland, vice chair of Healthwatch Rutland, and a local awareness and online awareness raiser volunteer for Carers UK. I’m passionate about ensuring unpaid carers get the help and support they need, and that they’re well informed of their rights so they can make decisions. I’m also passionate about young adults with additional needs getting the same opportunities as their peers so started the Out of Hours Club Rutland.

Deena Nimick

Northern Ireland

I am a service user and use Direct Payments to pay for the support I need to live an active life with spinal damage and limited mobility. I’ve been employed within the voluntary/community sector over the past 40 years. All roles I’ve undertaken have focused on promoting inclusion and creating opportunities for people of all ages, backgrounds and abilities to make their voices heard. 16 years ago I took up the post of Independent Living Adviser at the Centre for Independent Living NI (CILNI). In 2018 I became Regional Manager of CILNI’s Independent Living Advice and Advocacy Service/Team.

Jo Phillips

Wales

I’m the Mum of three teenagers, one of whom has complex additional needs that weren’t diagnosed until he became a teenager. Both of my other children have been impacted by their brother not having the correct support.

I’m a qualified independent advocate and regularly participate in local authority, regional partnership boards, and government consultations on legislation related to social services, ALN, and anything that relates to carers. I’m a trustee for Swansea Parent Carer Forum and feel very strongly that our adult children must be recognised and supported (“No wrong door”).

Luke Nash

England North & East Midlands 

Being involved in IMPACT’s Advisory Group is so important for me, not necessarily for myself but for the people who haven’t got a voice. I drew on social care later than most and realised that the quality of adult care is not at the level it should be. One of my biggest achievements within my charity work was writing a report on Changing Places and working with MENCAP on the Changing Places campaign while juggling my own education.

Natalie Patterson

Scotland

I am passionate about using my voice and lived experience to speak up for people like me with a disability and others who can’t speak for themselves. Disabled people should have equal access to employment and education. I want to help change the perceptions of disability and how we can live more inclusive lives. IMPACT gives me a forum to share the realities of this.

Together we are working to develop, support, monitor, advise and review IMPACT’s co-production activity. We will meet three times throughout 2022 and take part in two development sessions. Towards the end of the year, we will produce an annual report for the IMPACT Leadership Team on progress made during the year, areas of good practice and areas for further development. We look forward to opportunities to engage with other lived experience groups involved in co-production.

You can get in touch with us and find out more about our work by contacting [email protected]

Infographic exploring the achievements of the Co-production Advisory Group in 2023

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