Improving ‘living grief’ support for people with dementia and families
Project Background
The Facilitator project with Carers of West Lothian will work with unpaid carers for people with dementia, staff , and wider stakeholders to explore ‘living grief‘: grieving for the person with dementia while they are still alive.
Most support currently available online is extremely text-heavy and not interactive. This project will give faces and voices to the difficult, and stigmatised, topic of living grief. It will look at how to sensitively address challenging topics, like loss, identity and death, without skirting around the theme within the delivery of services as well as through improvements to their own website and published information. This project is based in Livingston, Scotland.
IMPACT Factfile
- Year: 2025 – 2026
- Delivery Model: Facilitator
- Four Nations: Scotland
- Themes:
- Resources:
Why Co-production Matters
Developing with, not for, means co-production rightfully sits at the heart of this project. I find this to be a truly humbling and meaningful way to work; engagement is deeper, turning lived experience into powerful ideas or solutions. Creating pathways that elevate the work beyond a traditional project and towards one that has meaning, responds to carer needs and captures what truly matters.
Meet Our Facilitator: Kayleigh Lytham
